DorrieDorrie

Busy Day1

Dorrie had a busy day on Friday. We had our follow up appointment with the cardiologist we saw while we were in the PICU. For those who don’t remember, there was a suspicion back then that she had developed pulmonary hypertension due to her lung disease, and this had seemed confirmed by two echocardiagrams which showed increased pulmonary artery pressures.

Luckily, the cardiac cath back in March failed to confirm any such diagnosis, and Dorrie was released from the PICU on captopril (a blood pressure med) to help improve her heart muscle, which -did- show some signs of stiffness (hypertrophy).

Friday she had an echo to see how her heart was looking now, 6 months later, and it all looks good! Pressures appeared to be normal and there was nothing alarming revealed. We’re going to remain on the captopril for now, especially as we go into cold and flu season, as this will hopefully help to keep her inevitable illnesses slightly less severe.

Dorrie was quite tired all day, unusually falling asleep in the office waiting room, and then again in her car seat on the ride home. This may be explained by the fact that tooth #2 has joined its neighbor. She’s been a little fussy off and on for most of the weekend, so that may not be the last tooth we see.

The day before, Dr. Optimist came to the house for a visit and we were finally able to wean her vent settings! Her PS above PEEP is now 7, down from… 8. Not much of a step, but at least it is one.

Posted by mom, under moving forward... or not, our little witch, trying to stay healthy