December
2008
Updates0
I’ll try to get some pictures up in the next few days, as it’s been a while since we’ve had any of those.
As far as updates go, the second half of November was pretty busy, but stable from a health point of view. Dorrie got to meet her grandpa for the first time, along with his friend, and we had a nice little visit. It had been quite a long time since Bob had seen any of his family, since they live out in the midwest.
We’d also been scheduled to go back up to the hospital for an appointment the day before Thanksgiving, but based on what we knew, we were dubious that this appointment would be worth the 6 hours of overhead involved in getting us and Dorrie up there. It just took us 2 months of periodic requests to finally get the specialist involved to confirm that the appointment was useless — he still can’t do the test he wants to do because of one of the medications Dorrie is on.
So that was a relief. The last thing I want to be doing during cold and flu season is taking her out. I can’t help remembering that it was 2 days after her Synagis shot last February that she came down with the cold that eventually landed us in PICU for 65 days. I’d like to avoid a repeat performance.
Dr. Optimist and her nurse have come around to our way of thinking, because though they had originally (in August or Sept) said that we would have to come to the office for our visits over the winter, they changed their minds and today made another home visit. Dorrie objected mightily to the shots and screamed for quite a while after. But at least her exposure to exotic germs was kept to a minimum.
We finally also have a second nurse again. Our original nurse from back in February had some availability again and so she’s now coming on Monday and Wed during the day. I’m still getting used to her; we’d only had her for 3 weeks before Dorrie got sick, so I didn’t really know her all that well to begin with. My major peeve right now is that she speaks too softly. Now this might normally be a plus when dealing with babies, but Dorrie’s hearing disorder makes it difficult for her to distinguish what noises she should be listening to and what are background noise. So we try to speak loudly and slowly to her to give her some assistance.