The end of the year is when one is supposed to look back and see how far you’ve come in the past twelve months. As far as Dorrie goes, I’m not sure we’ve really made all that much progress. We are home, yes, but last Christmas she was on nasal cannula; now she has a trach and is attached to a vent. Last Christmas she was eating about 15-20% of her food by mouth, but this Christmas we are down to 0%. Last Christmas she was working on her head control and starting to lift it up a bit; this Christmas she’s still doing that. Last Christmas we could hear her making sounds; this Christmas the trach prevents that.
The biggest changes are that she is home, that her oxygen saturations are quite stable, and that she is much bigger than last year (she was about 9-10lbs then, she’s 21-22lbs now, and about 7 inches longer). She hasn’t really made any developmental progress to speak of — still, at least we can sit her up now in a seat and strap her in.
But she is a happy baby, and she enjoyed her Christmas, even if it wasn’t quite the Christmas we imagined having this year.