DorrieDorrie

Easter Update3

In news I’m sure everyone is tired of hearing about, the nursing problem continues unabated. After managing to show up for two whole nights in a row, the latest superreliable nurse dispatched from the agency called in both nights last week. I expect that means she’s gone for good, but we shall see if they continue to string us along with promises of her return.

The rest of the week has been pretty calm, and Easter was nice.  Dorrie was in the mood to perform, and spent quite a while lifting up her head to look at the mutant singing ducken brought by Grammy.  Then I went out to lunch with mom and my brothers while Bob stayed at home to watch her. We brought back food for him and Dorrie decided to scoot around on her back to investigate what was going on at the sofa.  She discovered that the sofa is surrounded by evil ceramic tile which does not feel nice to someone pushing herself around on her back.

The biggest negative to the day was Dorrie’s failure to take an adequate nap, which led to a meltdown, a pukey and finally a so sleepy baby who couldn’t stay awake until bedtime and instead slept from 6-9:30pm and then woke up again.

We also had a fun adventure with the ventilator! Since Dorrie was asleep at the usual time we get her ready for bed, I wasn’t able to change the vent circuit. As she was still up around 11:30pm, I decided to do it then and just get it over with. Bob had already gone to sleep, but we do it by ourselves often enough, so I didn’t figure it would be a big deal.  (I bet you think you know where I’m going with this, and perhaps you do, but bear with me anyway.)

The change itself went off without a hitch.  I fired up the vent again to run a leak test before reattaching Dorrie to it.  FAIL!  The worst failure I have seen yet, accompanied by a sort of sucking straw noise I was sure meant one of the hoses had a hole in it.  But I could not see one or feel air coming out, so I ran the test again and this time it passed.   This time I noticed that the bag of inhalation water that runs to the humidifier was not only empty, but that the leak test had caused the bag to inflate like a balloon.  Ha ha, I thought, how amusing.  I changed the water bag and got Dorrie hooked up.

Then the ventilator began to alarm. HW FAULT it said. WTF I said.

The vent manual, which had been hanging around the living room getting in everyone’s way for nearly a year, was suddenly nowhere to be found.  The vent seemed to be working fine. Dorrie’s sats were 100. WTF I said again. HW FAULT said the vent, then beeped some more.

So I went upstairs and woke up Bob and made him come down and see it. Neither of us could guess exactly what the HW FAULT meant, so I got out the computer and started trying to find the manual online. I found it quite easily TODAY, but for some reason last night Google was being obtuse.  We called our vendor, who paged the on call person, who paged the on call RT.  By that point the vent had changed its mind about alarming and was quiet again. The RT was at least able to assist us in figuring out that HW FAULT meant that probably one of the sensor leads had gotten moisture in it and was helpfully letting us know in the most confusing and panic-inducing way possible.  Our best guess is it happened when the vent decided to inflate the saline bag with air.

Finally a picture of Dorrie in her Easter finery. I’ll try to upload a more extensive picture post some time this week.

Posted by mom, under nurse or no nurse, our little witch, tales of interest