July
2009
Week 1020
This week saw Dorrie progressing more with her stander. The PT put some foam blocks on the tray so that it’s easier for her to keep her arms from falling back, and now she finds it easy to keep her hands where she can use them. Her goals so far seem limited to getting things close enough to gnaw on them, but hopefully they may expand over time.
The gnawing on everything continues — our hopes for a break in teething were dashed at the beginning of the week when it was discovered that tooth #16 was not canine #4 but rather 2-year molar #1. There are bumps elsewhere (including that last canine) so probably some more teeth will make their way out over the next few weeks.
Now that we seem finally to all be well again (aside from daddy’s continued coughing) we’ve changed up Dorrie’s diet slightly. We hope eventually to be able to stop using the formula we’ve been on for the past year — Neocate — and let her eat real food. Ideally through the mouth, but the fact is that this is not going to be happening very soon, so for now we’ll need to blend it up so it can go through her tube. The trick is to figure out what real foods she can tolerate and then craft a nutritious diet from them that won’t drive us mad trying to make it. We’ve started simple, and this week she is getting 2.5oz of baby food prunes in one of her feedings every day. If that doesn’t cause any digestive distress, we’ll try introducing something else in a week or two.
She also gnawed on some carrot in a mesh feeder bag. She didn’t seem to mind it, though probably we’ll hold off on doing that regularly while we’re attempting to experiment with introducing significant quantities of other foods.
Bonus Pictures — Miss Tubbo at this time last year. Seeing her every day, it really seems like she hasn’t changed much at all. A bit leaner, of course, but just so it’s noticeable. Until you look at pictures and you realize holy crap.
