28
April
2011

Haircut2

Dorrie was mostly recovered from her cold, so we went forward with our plans for her to get her haircut.

As much as I think little girls are adorable with long hair, and so cute with their pigtails or braids, neither of those work well for Dorrie because of the amount of time she spends on the floor and with one side or another of her head rubbing up against something. We’ve occasionally attempted to put elastics or barrettes in her hair but they just get rubbed out in about thirty seconds.

So without the ability to tie up her hair, it gets not just in her eyes, but it also gets in the way while we’re trying to change her trach ties. It can be quite difficult trying to keep it up out of the way while also fastening the velcro tight enough that the trach isn’t likely to come out.

Therefore: time to have it cut! We’d cut it several times ourselves, but I thought maybe having a professional take a turn would let it come out better. Look nicer. Since I get to Supercuts maybe once a year if I’m lucky, and as nice as the idea of those kids’ haircutting places are, they also seem to me like they’d be pretty germy, we made an appointment with Grammy’s hairdresser.

Grammy, the nurse, Dorrie and I all headed to Hampton. We brought along Dorrie’s orange chair as a booster seat. We weren’t entirely sure how the day would go, so we’d booked in a long appointment just in case Miss D decided to have a meltdown. But to our surprise and pleasure she behaved beautifully. She didn’t try to jerk her head around, she didn’t get upset, and she let her hair get cut with no complaints at all.

Her only attempt at rebellion came after the haircut was all over: we stopped to change her diaper in the back of the car and she decided to pee all over her clothes and the nurse. (Which she found very hilarious.) So we made a detour past Grammy’s house to change and clean up before heading back home again.

27
April
2011

Easter: Postponed3

Many pictures backlogged, including great-grammy’s 90th birthday party. But otherwise things have been on a pretty even keel for the past few weeks. The pukies continue to be at a low ebb, the teachers have been coming (mostly) when they said, and nursing has been very stable.

We’ve been making a lot of plans for the summer, with the intention of getting Dorrie out of the house a lot more than she has in the past. The first step was to be Easter, where Dorrie would join all of us for a meal out and then visit Uncle Jonathan’s house (which none of us have ever seen, in spite of his having moved there 3 years ago.) Unfortunately, Dorrie developed a fever on Saturday night (Just a titch under 100 — but even that slight of a fever shot her heartrate up to 150) and had a very poor night sleep-wise as a result. So we postponed Easter and stayed home instead.

So far she seems to be recovering without any major issues. Fortunately it’s April vacation this week, so she hasn’t had to miss any school and we’ve been able to be very flexible with her sleeping and eating schedule.

The next scheduled event is Thursday — first non-mom haircut. Her hair is incredibly long now, but a huge mess. She’s constantly getting her fingers stuck in it, it’s in the way when we go to change her trach ties, and it hangs in her eyes. So it needs to come off. If she gets better head control we can think about letting it get long again, because then we’ll be able to tie it back. Right now any ties just get rubbed off immediately as she slides her head around on the floor.